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Biomedical Humanities

Deputy Director

Giuseppe Testa

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Biomedical humanities: a humanistic reflection on biomedical (oncological) research and on clinical (oncological) practice in order to draw their societal and ethical implications out both at collective and at individual level, and in order to ameliorate the quality of life of actual and potential (oncological) patients.

A better humanization of biomedical research and clinical practice can be obtained only through better humanities (better philosophical, ethical and societal awareness).

Activities

Recent advances in understanding the molecular bases of (oncological) diseases, at the level of genetic predisposition as well as of its interaction with individual lifestyles and environments, are drastically changing our perceptions of diagnosis and therapy.
Given this scientific scenario, innovative foundational, ethical, and sociological analyses are needed, and these could be provided inside the BIOMEDICAL HUMANITIES framework. It is a humanistic approach addressing that chain which finishes with the care of patients in clinical practice and which commences with the basic and translational researches on the molecular roots of diseases, on how to detect them, and on how to cope with them by taking into account individual patients’ genetic makeups, lifestyles and aspirations.

The research group in BIOMEDICAL HUMANITIES at the Department of Experimental Oncology of the IEO focuses on cancer research and cure and consists of three research units (RU):

RU1: Foundational questions
RU2: Individual and public ethical questions

RU3: Societal questions

  • Research projects

    RU1: Foundational questions

    There are at least two ways of addressing biomedicine and clinical practice from a philosophical perspective: one is more attentive to the philosophical side and one more attentive to the scientific side. Concerning the former, we are interested in the conceptual analysis both of terms belonging to biomedical research or clinical practice (gene, susceptibility, disease, therapy, cancer, stem cell, model organism, etc.) and of terms that may be explicated by means of biomedical knowledge (life, death, individuality, organism, etc.). Regarding the latter, we propose a philosophy that has a real impact on science, both at research and at clinical level. For example, i) we are developing a formal language that should permit to write intra- and infra-cellular processes as computable theorems; ii) we are working on bio-ontologies, which, in these years, have a great relevance relatively to the elaboration, storage and retrieval of the enormous bulk of data coming from the lab and from the clinical research.


    RU2: Individual and public ethical questions 


    Each step of the chain from the scientist’s lab bench to the patient’s bedside raises a host of ethical issues, both at the individual level and at the collective level. Our research focuses on some of these, for example those raised by biobanks, consent, clinical trials, human embryonic stem cells, patient stratification, and so on. Our aim is to improve the quality of the public discussion on these important issues as well as to promote responsible individual choices and effective public policies (we touch issues such as democratic legitimation of public policy concerning health matter, responsible and active citizenship in the health domain, freedom of choice and expression in relation to research and treatment, etc.). Our research is characterized, i) at public level, by an emphasis on deliberative practices to improve collective choices on ethical issues concerning biomedicine and clinical practice; ii) at individual level, on the establishment of a good ethical counseling to really empower patients in front of any diagnostic or therapeutic action needing an ethical decision.


    RU3: Societal questions


    In our Science and Technology Studies (STS) approach we focus on the mutual shaping of epistemic and normative orders that arise at the interface of biomedicine and society. The momentous developments of molecular biomedicine are unfolding in a space of experimentation that is not only technical and epistemic but also, and importantly, social. In its steep acceleration the production of biomedical knowledge is also being redistributed to a host of new sites that extend well beyond academia, and all the while the public space is itself changing rapidly, evolving new institutions and accommodating new relationships among citizens along with new distributions of power. From cells to sequences, from regulatory agencies to patent offices, we pay attention on the objects and sites of contemporary biopolitics, and harness STS to trace their implications for health care policy.

  • Publications

    • 1. G. Boniolo, Il pulpito e la piazza. Democrazia, deliberazione e scienze della vita, Raffaello Cortina, Milano 2011; Engl. Translation The Art of Deliberating. Democracy, Deliberation and the Life Sciences between History and Theory, Springer, Heidelberg 2012
    • 2. G. Boniolo, P. Maugeri (a cura di), Etica ai confini della biomedicina. Per una cittadinanza consapevole, Mondadori Università, Milano 2014.
    • 3. G. Boniolo, P.P. Di Fiore, S. Pece, Trusted Consent and Research Biobanks. Towards a "new alliance" between researchers and donors, Bioethics, 26(2012), 93-100
    • 4. A. Blasimme, B. Schmietow and G. Testa, Reprogramming potentiality: the co-production of stem cell policy and democracy, American Journal of Bioethics 13(2013), 30-32
    • 5. M. Curnutte, G. Testa, Consuming Genomes: Scientific and Social Innovation in Direct-to-Consumer Genetic Testing, New Genetics and Society, 31(2012), 159-181.


    PhD Students’ Publications

UN PICCOLO GESTO E' PER NOI UN GRANDE AIUTO

PARTNERSHIP

Università degli Studi di Milano

MAIN CREDITS

Ministero della Salute Joint Commission International bollinirosa

© 2013 Istituto Europeo di Oncologia - via Ripamonti 435 Milano - P.I. 08691440153 - Codice intermediario fatturazione elettronica: A4707H7

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